Bedside & Support Sheets · One-Page View
What Helps / What Makes Things Harder
One shareable page that replaces the version people would otherwise imagine.
A keep-close version. Read it here, or screenshot this page to have it on your phone — print and PDF copies will appear once final files are attached.
A two-column truth, stated once: what tends to help, and what tends to make things harder. Personal support information — not a universal rule about ME/CFS.
What may help
Short communicationOne question at a timePractical help that asks nothing in returnFlexible plansReduced sensory input — light, noise, movementEssentials within reachClear, limited optionsQuiet companyAdvance notice of everything
What may make things harder
Repeated explanationsUnexpected visitorsLots of choices at onceLoud environmentsPressure to reply quicklyUnsolicited treatment adviceMoving things without askingAssuming appearance reflects capacity
Yours to add
The personal one that isn't listed
e.g. Saying 'you look well' — it lands harder than it sounds
This is a guide to one person's experience, not a rule about the illness. Other people's lists will differ — that's expected.