Specialist Support
Support for Moderate, Severe & Very Severe ME/CFS
ME/CFS can affect people very differently. For some, everyday tasks such as sitting upright, speaking, eating, washing, reading or using a screen may require significant effort or may not always be possible. This section offers lower-demand support for people living with moderate, severe or very severe ME/CFS, and for the people supporting them.
Use only what is manageable. You do not need to read this section all at once.
Bedside Support
Short practical support for days spent mainly in bed or reclining.
OpenCommunication When Words Are Difficult
Very short scripts, yes/no options, one-word choices and ways another person can help.
OpenSensory Support
Low-demand ideas for reducing light, sound, screen, touch and environmental stimulation.
OpenFood, Drink & Essentials Within Reach
Making essential items easier to access when movement or sitting upright is difficult.
OpenPersonal Care With Very Limited Capacity
Gentle considerations for washing, dressing and daily needs.
OpenSupport From Family, Friends & Carers
Helping without creating unnecessary conversation, decisions, noise or demands.
OpenHealthcare & Appointments With Limited Capacity
Brief notes, involving another person, reasonable adjustments and remote options.
OpenWhen Even Reading Is Too Much
Ultra-short support with no long paragraphs.
OpenWhat Can Wait?
A very simple triage-style reflection tool.
OpenMy Bedside Support Sheet
A one-page support sheet to screenshot or print and share with helpers.
OpenYou may also find Helpful Zones — small practical set-ups that reduce repeated searching, movement and decision-making on low-energy days.